CDH
occurs when the diaphragm fails to fully form, allowing abdominal
organs into the chest cavity and preventing lung growth.
CDH occurs in 1 of every 2500 births; somewhere in the world, a baby is born
with CDH every 10 minutes. 50% of babies diagnosed with CDH
do not survive. The cause is not known. Over a half million
babies have been born with CDH since 2000. CDH is as common as Spina Bifida and Cystic Fibrosis but there is very little awareness and even less research. CHERUBS is working hard to raise more CDH Awareness, and in turn, more
CDH Research, while we continue to support families affected by this
devastating birth defect.
CHERUBS is an IRS recognized 501(c)III organization run solely by
volunteering CDH parents, grandparents and survivors working to help
other families affected by Congenital Diaphragmatic Hernia. Please
donate to help further our work.
Worldwide CDH Awareness
Save the Cherubs Congenital Diaphragmatic Hernia Awareness Campaign
Cherubs
are everywhere. They are your next door neighbor's new baby.
The little girl on the swingset at the park. The
teenager that sits behind your son in high school geometry
class. The person behind you in the grocery store
line. Their scars are hidden under clothes, their
stories a bit sad and taboo to talk about - so the miracles are not
seen with the naked eye and you have probably mistaken a cherub for a
"normal" person many times. But they are there; walking
miracles with invisible wings. And missing babies that
belong to the grieving parents who you don't see grieve; your
local bank teller, the man who held a door for you at the gas station,
the old woman who drove the car in front of you at the stop light this
morning. Cherubs are everywhere.
Unless
you have been affected personally by CDH, you probably have never heard
of it. The mission of "Save the Cherubs" is to make
Congenital Diaphragmatic Hernia a phrase everyone knows how to say and
everyone knows what it means. By raising awareness, we hope to
raise research funds to save these babies - Save the Cherubs.
Congenital
Diaphragmatic Hernia occurs when the diaphragm fails to fully form,
allowing abdominal organs into the chest cavity and preventing lung
growth. Babies born with CDH often endure long hospitalizations and
other complications such as pulmonary hypertension, infections, feeding
issues, asthma and temporary developmental delay. Some babies
develop worse complications and sadly, 50% of babies born with CDH do
not survive. The cause of CDH is not known.
Cherubs
are people who were born with Congenital Diaphragmatic Hernia, a severe
and often fatal birth defect that occurs as often as Cystic Fibrosis
and Spina Bifida. Every 10 minutes a baby is born with CDH -
adding up
to over half a million babies since 2000. Yet, CDH is given
very
little media attention, virtually no research money and until CHERUBS
came along in 1995 there was no information and no support for families
of babies diagnosed with CDH. We have no national
telethons, no
large corporate sponsorships. We have been struggling for
years to bring attention to CDH and now, we are going to do so on a
national level.
For
15 years, cherubs have been the awareness symbol of Congenital
Diaphragmatic Hernia (CDH). Through this project, families
around the world are working with CHERUBS, photographers and the media
to raise CDH awareness in a unique and striking photo and marketing
campaign, which we hope will take your breath away and make you want to
learn more about CDH and how you can help save these children.
CHERUBS
- The Association of Congenital Diaphragmatic Hernia Research,
Awareness and Support was founded in 1995 to give hope and
information to families of children affected by Congenital
Diaphragmatic Hernia (CDH). We are a 501(c)III
non-profit global CDH organization with members in 38
countries. Run solely by volunteers and donations,
CHERUBS strives to allow families to have free access to information
materials, support services, awareness projects and to make a CDH
connection with other families going through the same
ordeal. We are just a grassroots organization of
families working hard to make a difference and trying to give Congenital Diaphragmatic Hernia Awareness wings to take flight.
CHERUBS is fighting hard to search for the cause, prevention and best treatments of CDH. We invite you to help us to help these families and to help Save The Cherubs.
CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support
CDH
occurs when the diaphragm fails to fully form, allowing abdominal
organs into the chest cavity and preventing lung growth.
CDH occurs in 1 of every 2500 births; somewhere in the world, a baby is born
with CDH every 10 minutes. 50% of babies diagnosed with CDH
do not survive. The cause is not known. Over a half million
babies have been born with CDH since 2000. CDH is as common as Spina Bifida and Cystic Fibrosis but there is very little awareness and even less research. CHERUBS is working hard to raise more CDH Awareness, and in turn, more
CDH Research, while we continue to support families affected by this
devastating birth defect.
